“In-home nursing for motor neurone disease (MND) across Sydney provides specialist nursing and progressive care planning — PEG feeding, tracheostomy and suctioning support, non-invasive ventilation management, symptom relief, and family education — coordinated with Sydney MND clinics, neurology teams, and specialist palliative care services.”
MND moves quickly, and the care plan needs to keep up. Our in-home nursing across Sydney supports people living with MND and their families through every stage — coordinating with Sydney MND specialist services, neurology teams at RPA and other tertiary hospitals, and specialist palliative care providers, with a small consistent team that learns the household and adapts as needs change.
Quick facts
Citable facts for people living with MND, families, MND NSW coordinators, neurologists, and palliative care teams arranging in-home support.
In-home MND care is for people at every stage of the disease who want to remain at home for as long as it's safe, and the families and care teams supporting them.
We tailor MND care to the stage of disease and what matters most to the person and family at that point.
PEG site care, enteral feeding regimes, flushing, and tolerance monitoring delivered in line with dietitian and medical team instructions.
Airway care, suctioning support, stoma site monitoring, and tube changes as directed by the treating team — delivered in the home by experienced nurses.
Practical support for BiPAP use at home — mask fit, settings checks following the respiratory team's plan, and family education on safe use.
Regular monitoring and support for symptom management — pain, secretions, anxiety, sleep — in coordination with your MND specialist and palliative care team.
Practical guidance for family on transfers, suctioning if appropriate, what to watch for, and structured respite so primary carers can sleep and rest.
MND care requires clinical skill, calm presence, and the ability to plan ahead as the disease progresses.
Our nurses have hands-on experience with PEG, tracheostomy, BiPAP, and progressive neurological conditions in the community — so we're not learning your equipment as we go.
Small caseload means the same nurses see you and your family through changes — important for trust and confidence at this stage of life.
We work from MND clinic and specialist plans, liaise with palliative care services, and communicate changes that matter — so the plan stays current.
Funding can come from NDIS (for participants under 65 at first plan), aged care packages (Support at Home or CHSP for 65+), DVA Community Nursing for eligible Veteran Card holders, or private fee-for-service. MND often requires intensive funding, and your MND clinic team or support coordinator can help argue for appropriate plan levels.
Yes, where it's clinically safe and the family wishes it. We coordinate with specialist palliative care services across Sydney for symptom management, comfort care, and family support in the final stages. We don't replace specialist palliative care — we complement it with consistent in-home nursing presence.
Yes. Our nurses have hands-on experience with PEG feeding, tracheostomy care including suctioning, and supporting non-invasive ventilation (BiPAP) use at home. We work from the treating team's plans and don't make autonomous clinical decisions outside that scope.
Personalised clinical care tailored to your unique required outcomes.
Navigating the healthcare system with expert advice.
Tell us about your situation and we'll talk through what safe, consistent in-home care could look like — at the stage you're at now and as needs change.
No obligation. We'll acknowledge your message quickly and get back to you within 24 hours. We're here to listen and help.